Top Tips for Families and Carers

Giving feedback, raising concerns and making complaints can be difficult and time consuming. When you care for someone with a learning disability, autism or both, as I do, this can be even harder. A whole range of challenges can arise during the lifetime of a person with a learning disability, autism or both across education, health and social care, through childhood to adulthood.

These top tips are about giving feedback, raising concerns and making complaints across education, health and social care. Some organisations handle this well, while others have much more work to do. There are tips for dealing with often complex and sometimes difficult systems while looking after yourself.

This booklet is designed to help families, parent carers and other carers to:

• be confident about having conversations with people in all the organisations involved in the lives of those they care for, and

• feel more empowered to understand and navigate the complex systems of feedback, concerns and complaints.